Getting home has been great just having the smells and sounds of the house around me like a coocon gives me lots of strength. The good fresh food (mostly soups, smoothies and stews) all give me the best chance ever and holly has taken to giving me little hugs in passing to cheer me up.
However things are still pretty tough as the IVE chemo is living up to its reputation as one of the tougher regiums. My gut problems progressed into painful cramps and other issues which eventually had me back in hospital the day after my release for examinations, although some medicines are available to take the edge off the cramps I am awaiting the culture results before they can determine which bug is causing the tummy problems. With half the city currently dealing with flu or gut rot the lab is a bit busy. In the meantime I have managed about 10 or 15 min at a time out of bed or toilet all not to be recommended.
At the same time the depth of the chemo fatigue on this one is really something its like double china jet lag after a long day working and two beers, that point were your head has already fallen off your "prop" hand twice and just missed your soup while someone important is still talking to you. Anyway suffice to say I pause in sentances and just sometimes lie down because I just have to right away, just at that minute. Which is quite funny from the outside apparently Lee and the kids are having fun with me shambling down like a yeti in my dressing gown, slurping my soup or lamb stew (food is great) then the tummy cramps set in and I groan off to my lair upstairs to sleep. I least I can ossiclate between the day bed in the study and my real bed for variety.
Anyway this has taken four attempts to write so I am going to let myself off here, ironically Jamariqui are singing "feels good, feels so good" in the background ! Mum has finally learnt to email today so she may even make it to the blog at some point, a good step forward though so I sent her a picture of poppy and holly as the next challenge. Off into my cave, hospital visit tomorrow to have the line cleaned and bloods taken I let you know if they have a way round the gut rot. Otherwise time for bed at 7pm (having got up at 6pm)
Cheers
Gerry
Thursday, January 11, 2007
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